The ECCI congenital cytomegalovirus Registry is a database capturing detailed data on babies with a confirmed diagnosis of congenital CMV in Europe including route of presentation, investigations, treatment and longer term outcomes.
Through European collaboration within the well-established Penta ID network, detailed data analysis of a large cohort of babies within Europe can help better define severity and impact of disease following diagnosis at different stages in the clinical pathway. It is hoped that the data entered will provide a firm base for conducting both interventional studies and studies of potential biomarkers for longer-term morbidity.
This is the list of collaborating institutions:
| Institution | Country | Correspondence |
|---|---|---|
| Bambino Gesù Children’s Hospital | Rome, Italy | Dr Maia de Luca, Dr Patrizia D’Argenio |
| Fondazione IRCCS Policlinico San Matteo | Pavia, Italy | Dr Francesca Garofoli, Dr Giuseppina Lombardi, Dr Mauro Stronati |
| Oxford John Radcliffe | Oxford, UK | Prof A. Pollard |
| Imperial | London, UK | Dr Hermione Lyall |
| Pennine Acute Trust | Manchester, UK | Dr Paddy McMaster |
| St George’s Hospital | London, UK | Dr Mike Sharland/Dr Suzanne Luck |
| Plymouth Hospitals NHS Trust | Plymouth, UK | Dr Oladipo Aworinde |
| Heart Of England NHS Foundation Trust | Birmingham, UK | Dr Scott Hackett |
| Royal Free London NHS Foundation Trust | London, UK | Dr Marice Theron |
| Alder Hey Children’s NHS Foundation Trust | Liverpool, UK | Dr Andrew Riordan |
| Cardiff and Vale University Health Board | Cardiff, UK | Dr Jennifer Evans |
| University Hospitals of North Midlands NHS Trust | North Staffordshire, UK | Dr Julia Uffindell |
| NHS Ayrshire and Arran | Ayrshire, UK | Dr Jon Staines |
| Brighton and Sussex University Hospitals | Brighton, UK | Dr Katy Fidler |
| Homerton university Hospital Trust | London, UK | Dr Swee Fang |
| Newcastle upon Tyne Hospitals NHS Foundation Trust | Newcastle, UK | Dr Marieke Emonts |
| Royal United Hospitals Bath NHS Foundation Trust | Bath, UK | Dr Peter Rudd |
| University Hospitals Bristol NHS Foundation Trust | Bristol, UK | Prof Adam Finn |
| Royal Devon and Exeter NHS Foundation Trust | Exeter, UK | Dr Nigel Osborne |
| Bradford Teaching Hospitals NHS Foundation Trust | Bradford, UK | Dr Sunita Seal |
| Guy’s and St Thomas’ NHS Foundation Trust | London, UK | Dr Esse Menson |
| Royal Cornwall Hospitals NHS Trust | Cornwall, UK | Dr Andrew Collinson |
ECCI is currently sustained by voluntary contributions from researchers at SGUL and PENTA-ID.
